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Journey mapping paediatric oncology care in Saudi Arabia: A mixed-methods study

Febe V Lacson1,2, Dorien Wentzel1

  • 1Department of Nursing, College of Health Sciences, University of KwaZulu-Natal, Durban, South Africa.

Insights

Patient journey mapping improved pediatric cancer care by detailing family experiences. This approach identifies key themes in care, highlighting areas for enhancement in treatment pathways.

Area of Science:

  • Healthcare Management
  • Patient Experience Research
  • Oncology

Background:

  • Global rise in childhood cancer necessitates improved patient and family experiences.
  • Patient journey mapping is a key strategy for enhancing paediatric oncology care.
  • Understanding family perspectives is crucial for optimizing treatment outcomes.

Purpose of the Study:

  • To outline the development of a patient journey map for paediatric oncology.
  • To present family insights across the paediatric oncology care pathway.
  • To identify areas for improvement in paediatric cancer care delivery.

Main Methods:

  • Explanatory sequential mixed-methods design utilized.
  • Quantitative data from 134 family members via Press Ganey Survey.
  • Qualitative data from 9 interviews using manifest content analysis, refined by Delphi method.

Main Results:

  • Survey achieved a 77% response rate.
  • Nine interviews yielded six key themes: nursing care, physician care, positive/negative experiences, care improvements, and emotional journey.
  • Integrated data informed the development of a descriptive care map.

Conclusions:

  • The study offers valuable insights into family satisfaction with paediatric oncology services.
  • Identified key themes highlight specific areas for service improvement.
  • Visualizing the patient journey aids healthcare providers in addressing care process gaps.
Abstract

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