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"Our knowledge, your support": Exploring the research priorities of adults who stutter and perceived supports to
Amy Connery1, Arlene McCurtin2
1Department of Clinical Speech & Language Studies, Trinity College Dublin, Ireland.
Background:
Stuttering research tends to be researcher-led and there is minimal engagement with adults who stutter to ascertain their research priorities. Research underpinned by the priorities of adults who stutter and which reflects constructs of research engagement has the potential to enhance the translation of research into clinical practice, improve intervention outcomes and empower those who stutter to have a voice in influencing future research directions.
Purpose:
This study aimed to identify: the research priorities of adults who stutter; and the actions that researchers need to undertake in order to support the active participation of adults who stutter in future research activities. This exploratory study represents the first step in executing a larger-scale study on priority setting and partnership between researchers and adults who stutter.
Method:
Recruitment was achieved through study advertisement by stuttering support groups and university-based research centres in Ireland, the UK and Canada, and using social media platforms. A modified online World Café methodology was employed where adults who stutter participated in rounds of discussions. Analysis of participants' data was completed using qualitative content analysis and an iterative member-checking process.
Results:
Eleven adults who stutter (male: n = 7; female: n = 4) participated in the World Café. Seven themes relating to the participants' research priorities, and three themes relating to actions that researchers can take to support future partnerships with people who stutter were identified.
Conclusion:
Findings of this exploratory study will inform the methodology of a larger study on research priority setting and partnership between researchers and adults who stutter.
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