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[The Swedish Neonatal Quality Register (SNQ) - a complete register for a complex chain of events]
Lars Navér, Stellan Håkansson1, Lena Swartling Schlinzig2
1docent, Umeå universitet; databashanterare, SNQ.
Abstract:
The Swedish Neonatal Quality Register (SNQ) is a nationwide database with excellent completeness and data validity. The coverage ratio is 98% regarding pre-term infants, and data from 230,000 infants are available in the register. All neonatal units in Sweden report daily, enabling instant online data availability. It covers all newborn infants admitted for neonatal care (approximately 10% of all births in Sweden). The aim is to provide professionals, families and stakeholders with data on capacity, process and outcome measures to stimulate development and improvements of care. SNQ is a comprehensive register for a complex and often long chain of also post-neonatal events. The register includes neonatal intensive care, home care, transport, and long-term follow-up of health and development. A process towards increased automatic data transfer from medical records is underway. After discharge, families are invited via SMS to provide feedback on their experiences and the quality of care.
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