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The Perspective of Parents and Nurse Navigators Following the Use of the Distress Detection Tool for Caregivers in
Pascal Bernier1, Leandra Desjardins2, Marie-Claude Charette3
1Sainte-Justine University Hospital Centre, Hematology-Oncology Program, Montreal, Quebec, Canada; Azrieli Research Center of the Sainte-Justine University Hospital Centre, Immune Diseases, and Cancer axis.
Background:
Systematic distress screening is recognized as a standard of care for parents of children undergoing cancer treatment. The implementation of distress screening in this population has been associated with several limitations, particularly organizational barriers. Despite this, few studies have examined stakeholder perspectives during the implementation of this standard of care.
Objectives:
This study aimed to explore (1) the usefulness and overall appreciation of the Distress Detection Tool (DDT) by parents and Oncology Nurse Navigators (ONNs), (2) perceptions of ONNs' competencies following the use of the tool, and (3) perceptions of available professional, organizational, and time resources.
Methods:
This exploratory, longitudinal feasibility study used surveys at three timepoints (pre-DDT, and two post-use) with both ONNs and parents. Data were analyzed descriptively (means, percentages, and ranges). Open-ended survey responses provided qualitative depth to support quantitative results.
Results:
Twenty-six participants were recruited; 17 completed all timepoints (ONNs n = 2; parents n = 15). Both groups perceived the DDT as useful (ONNs 100%; Parents 92.3% at T3). The ONNs considered themselves having the knowledge (100% at T3) and being skilled (100% at T3) to use the tool, but emphasized that social workers may be better suited to administer it, as it falls within their area of expertise. The ONNs perceived organizational barriers to screening for distress, including a lack of space (ONNs 100%), time (ONNs 50%), and professional resources (ONNs 50%). Some parents highlighted confidentiality issues and the burden on ONNs.
Conclusion:
The DDT is perceived as useful for supporting families in pediatric oncology, but implementation requires attention to organizational resources, confidentiality, and human resources. Centers should consider which healthcare professionals are most appropriate and motivated to implement distress screening in routine care.
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