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Coronary artery patient's empowerment through a user-centered design of an electronic personal health record: A
Baran Bayati1, Maryam Ahmadi1, Abbas Sheikhtaheri1
1Department of Health Information Management, School of Health Management and Information Sciences, Iran University of Medical Sciences, Tehran, Iran.
Insights
Electronic personal health records (e-PHRs) can help patients manage coronary artery disease (CAD). User requirements for e-PHRs must be identified and incorporated during development for effective CAD self-management.
Area of Science:
- Cardiology
- Health Informatics
- Patient-Centered Care
Background:
- Coronary artery disease (CAD) is a leading cause of cardiovascular morbidity.
- Electronic personal health records (e-PHRs) offer potential for CAD complication prevention and management.
- Tailoring e-PHRs to patient needs is crucial for effective self-management.
Purpose of the Study:
- To identify user-centered requirements for electronic personal health records (e-PHRs) designed for patients with coronary artery disease (CAD).
- To understand the perspectives of patients and cardiologists on essential e-PHR features for CAD management.
Main Methods:
- Qualitative study employing semi-structured interviews with 25 CAD patients and cardiologists in 2024.
- Digital recording and verbatim transcription of interview data.
- Framework analysis using MAXQDA software for data interpretation.
Main Results:
- Emergence of four key themes, nine subthemes, and 25 categories from data analysis.
- Identified essential e-PHR content, functional, and nonfunctional requirements.
- Defined critical conditions for successful e-PHR implementation in CAD patient care.
Conclusions:
- e-PHR development should prioritize long-term usability and patient engagement for effective CAD self-management.
- Involving end-users throughout the system development lifecycle is essential to align e-PHRs with user needs.
- Future e-PHR iterations should focus on demonstrable benefits for patients managing CAD trends.
Background:
Coronary artery disease (CAD) is the most common cardiovascular disease. Electronic personal health record (e-PHR) enables patients with CAD to prevent or postpone complications. This study aimed to identify the requirements of e-PHR tailored for patients with CAD from the perspective of its potential users.
Materials And Methods:
This qualitative study was conducted in 2024. Data were collected through semi-structured interviews with 25 patients and cardiologists. The interviews were recorded digitally and transcribed verbatim. The data were analyzed using the framework analysis method and MAXQDA (version 10, VERBI Software GmbH).
Results:
Four themes, nine subthemes, and 25 categories emerged from data analysis. The main findings included necessary e-PHR contents, functional and nonfunctional requirements, and conditions for implementing it.
Conclusion:
The developers should improve the performance of e-PHRs for long-term use by engaging patients and offering benefits for them to self-manage CAD disease trends. This would be better achieved by involving potential user groups in all phases of system development to ensure that e-PHRs match with users' requirements.
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Purpose of Health Records II
