Beyond Knowledge Transfer: Caregivers' Evolving Medication Information Needs Across Paediatric Oncology Treatment

To identify and describe the medication information needs and preferences of caregivers of children with cancer, and the factors that support or impede those needs being met.

Qualitative descriptive study guided by reflexive thematic analysis.

Between November 2024 and July 2025, semi-structured interviews were conducted with 13 caregivers purposively recruited from a tertiary paediatric oncology centre in Australia. Data collection and analysis proceeded concurrently using reflexive thematic analysis.

Caregivers described receiving supportive medication information, yet their information needs persisted as responsibility for medication management shifted to families. Needs reflected the practical, emotional, and cognitive demands of translating clinical instructions into safe home-based care. Caregivers relied on visual tools, written schedules, and trusted clinicians to support medication management. High satisfaction with medication information coexisted with vigilance and uncertainty, highlighting a gap between information provision and the realities of home-based medication management.

Medication information needs in paediatric oncology are dynamic and linked to the transfer of responsibility to families. Phased, system-integrated approaches that support caregivers during care transitions and treatment are required.

Reconceptualising medication information as an iterative process rather than a discrete event is recommended. Transition support, decision aids, and standardised visual medication tools may reduce cognitive burden and enhance medication safety.

This study addresses the gap between providing medication information and how caregivers manage complex home-based regimens. Unmet needs stem from the demands of medication administration during care transitions and when managing 'as required' medicines. Findings offer practical insights for paediatric oncology nurses, pharmacists, and policymakers designing transition processes and medication safety strategies in family-managed cancer care.

Consolidated Criteria for Reporting Qualitative Research 32-item checklist.

Caregivers reviewed the interview guide prior to interviews and were invited to provide feedback; no changes were required.