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Bianca Brijnath¹, Yen Nguyen¹

¹La Trobe University, Bundoora, Victoria, Australia.

Journal of Clinical Epidemiology

|September 4, 2026

Abstract

Objective:

To describe a co-designed Participant Information and Consent Form (PICF) developed to improve accessibility for ethnically diverse communities and consider implications for research representativeness.

Approach:

A generic PICF was redesigned with a consumer advisory group and researchers and piloted in community-based workshops.

Findings:

Participants and facilitators perceived the revised PICF as easier to understand and more supportive of engagement with the consent process. Inaccessible consent materials may contribute to differential self-selection during recruitment.

Conclusion:

Consent accessibility is both an ethical and methodological consideration. Co-design may help reduce avoidable participation barriers, although effects on recruitment and representativeness require further evaluation.

Keywords:

ethnic diversity health literacy informed consent participant information research participation selection bias

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