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Published on: February 14, 2019
Children with Disabilities and Chronic Diseases: Perspectives, Challenges, and Opportunities: A Guest Editorial for
1Department of Nursing, College of Health Sciences, University of Sharjah, Sharjah, United Arab Emirates.
Abstract:
Children with disabilities and chronic diseases experience intersecting health, developmental, psychosocial, educational, environmental, and family challenges, but their clinical trajectories and service needs are not interchangeable. This Guest Editorial accompanies the article collection "Children with Disabilities and Chronic Diseases: Perspectives, Challenges, and Opportunities" and provides an integrated thematic synthesis of its six empirical articles available on 29 May 2026, supplemented by contextual pediatric and WHO sources. We organize this heterogeneous evidence thematically rather than treating it as proof of a single model. The editorial's distinctive contribution is an adaptive common-core plus condition-specific-modules roadmap: every child should have a named coordinator, a co-produced shared care plan, consent-based information exchange, cross-sector referral agreements, and outcomes meaningful to children and families; modules should then be tailored to acute episodic or life-limiting illness, long-term developmental or neurodevelopmental disability, mental-health trajectories, or environmental and preventive risks. Integrated care is presented as a governance and delivery approach spanning health, education, and social care, not simply the simultaneous involvement of several professionals. Because implementation depends on local governance, financing, workforce, digital infrastructure, and service availability, the roadmap is intended for adaptation across high-, middle-, and low-resource settings and requires empirical evaluation.
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