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Lived Perspectives on "Reconstructing Person-Centeredness"
Walter Moczygemba1, Lauren Stratton2, Sheryl Zimmerman1
1Cecil G. Sheps Center for Health Services Research, and School of Social Work, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Abstract:
Numerous papers in the "Reconstructing Person-Centeredness" supplement of the Journal of Applied Gerontology reference the perceived relationship between person-centeredness and quality dementia care, from fostering meaningful relationships and individualizing care, to practical applications of shared decision making and co-design of technologies and research measures. This article draws upon reflections from members of the Alzheimer's Association Early Stage Advisory Group regarding person-centeredness and quality dementia care. Their experiences, beliefs, and perspectives provide lived examples and context to three cross-cutting topics discussed throughout the supplement: relationships as underlying person-centeredness, the role of person-centered care in long-term and other healthcare settings, and person-centeredness and technology. By bridging first-hand narratives with academic inquiry, this article adds context to other papers in this supplement, and addresses the importance of person-centered dementia care from the perspective of those living with dementia.
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