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Dyspnea in Children with Serious Illness
Nadine Lusney1, Camara van Breemen1
1Nadine Lusney, BScN, RN, MN, CHPCN(N), is Clinical Nurse Specialist, Canuck Place Children's Hospice, Vancouver, Canada; Department of Applied Sciences, School of Nursing, University of British Columbia, Vancouver, Canada.
Abstract:
Dyspnea is a common and distressing symptom in children living with serious illnesses, particularly near the end of life, and requires thoughtful, family-centered assessment and management. A stepwise nursing approach to pediatric dyspnea is explored, which includes clinical assessment, identification of potentially reversible causes, and shared decision-making grounded in the child's symptoms, goals of care, and family context. Using a case study of a child with metastatic osteosarcoma, practical strategies are highlighted for symptom management, including nonpharmacologic interventions, communication, anticipatory guidance, and pharmacologic treatment. It is paramount to balance evidence-based practice with value-based care to reduce suffering, support function and comfort, and respond adaptively to changing needs across the illness trajectory.
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