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Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care
Published on: February 16, 2011
[Patient management and patient autonomy: An ethical tension?]
Aline Weis1,2, Andreas Bruns3, Julia Sanchez1
1Institut für Medizin- und Datenethik, Universität Heidelberg, Medizinische Fakultät, Tiergartenstraße 15, 69121, Heidelberg, Deutschland.
Abstract:
In the context of current debates in health policy, patient management is increasingly being discussed in the German healthcare system. These measures aim to coordinate access to care, reduce both inappropriate and over-provision of care, and guide patients through a complex healthcare system according to their needs. Critics, however, see this as a violation of patient autonomy and free choice.This article examines whether, and if so, to what extent, there is a conflict between patient management and autonomy. The starting point is an analysis of whether and to what extent patient management conflicts with the principle of autonomy. This analysis is based on an understanding of autonomy that encompasses not only the absence of coercion or restrictions on freedom of choice, but also the ability to make well-considered decisions through appropriate information and support.The article demonstrates that management mechanisms are not necessarily at odds with autonomy. Rather, they can structure decision-making spaces, improve orientation, and thus support autonomous decision-making. This is supported by empirical findings that show that formal freedom of choice alone does not guarantee that patients access care in an informed and self-determined way. Instead, structuring instruments are frequently perceived as helpful support.The article then formulates three key criteria for the ethical evaluation of patient management. First, it must be examined whether management mechanisms enable or effectively prevent patients from making preference- and value-based decisions. Second, their contribution to the quality of care is crucial: control is ethically justifiable if it promotes evidence-based and coordinated care without worsening patient outcomes. Third, its significance for justice and fair resource allocation must be considered. In a solidarity-based healthcare system, patient management can be legitimate if it serves to allocate limited resources in a transparent, needs-based, and accountable manner. If these criteria are met, patient management does not conflict with the principle of respect for patient autonomy; rather, in the best-case scenario, it promotes it.
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