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The Guidelines International Network Public Toolkit: Supporting Guideline Developers to Implement Best-Practice for
Sarah Scott1, Anneliese Synnot2,3, Karen Graham4
1National Institute for Health and Care Excellence (NICE) Manchester UK.
Abstract:
Patient and public involvement (PPI) is increasingly recognised as essential to the development of trustworthy and relevant clinical guidelines. However, guideline developers face persistent challenges in implementing best-practice PPI, including developing an appropriate PPI strategy, recruiting and supporting patients, and including diverse perspectives. The Guidelines International Network (GIN) Public Working Group developed the GIN Public Toolkit to address these challenges and support meaningful involvement across the guideline development lifecycle. This commentary outlines the Toolkit's background, purpose, structure, global impact and future directions. Freely available online, the Toolkit provides practical guidance and case examples based on the experiences of guideline developers around the world. Since its launch in 2015, the Toolkit has evolved to include 10 chapters delivered via dual-format: e-print and a website. Website analytics and citation data indicate the Toolkit's growing global reach, supported by the ongoing chapter translations, training and dissemination activities. The Toolkit's vision is to remain a living resource that is shaped by collaboration and is responsive to guideline developer's needs. Future directions include increasing the Toolkit's accessibility through further translations, refining citation practices and targeted promotion and dissemination strategies. The GIN Public Toolkit continues to build global capacity for meaningful PPI in guideline development.
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