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Supporting Communication About Values Between People with Multiple Chronic Conditions and their Providers
Andrew B L Berry1, Catherine Y Lim2, Tad Hirsch3
1University of Washington, Seattle, WA, USA.
Abstract:
People with multiple chronic conditions (MCC) often disagree with healthcare providers on priorities for care, leading to worse health outcomes. To align priorities, there is a need to support communication about what patients consider important for their well-being and health (i.e., their personal values). To address barriers to communication about values, we conducted a two-part study with key stakeholders in MCC care: patients, informal caregivers, and providers. In Part I, codesign activities generated seven dimensions that characterize stakeholders' diverse ideas for design: explicitness, effort, disclosure, guidance, intimacy, scale, and synchrony. In Part II, we used the dimensions to generate three design concepts and presented them in focus groups to further scrutinize findings from Part I. Based on these findings we outline directions for research and design to improve patient-provider communication about patients' personal values.
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