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Evaluating YouTube videos for Hodgkin lymphoma patient education
Stephanie Quon1, Sandy Lum-Wang1, Paris-Ann Ingledew2,3
1Vancouver Fraser Medical Program, Faculty of Medicine, University of British Columbia, Vancouver, British Columbia, Canada.
Abstract:
Hodgkin lymphoma (HL) is a highly treatable malignancy. As patients and families seek information online, educational resources are essential. YouTube is widely used for health information, but the quality of HL-specific content is unclear. We evaluated the characteristics, content, and reliability of YouTube videos for HL patient education. Search terms generated a list of 50 relevant videos. Data were extracted and analyzed using validated video assessment tools. Two independent reviewers evaluated reliability; accuracy was assessed using a structured consensus document across five domains. Videos most commonly covered treatment options, diagnosis, prognosis, and symptoms; follow-up, prevention, and complementary therapies were less frequently addressed. Most videos were produced by nonprofit organizations or healthcare facilities. Overall reliability was moderate, with higher scores for educational videos. While many videos provide reliable content, follow-up care, screening, prevention, and transparency about information sources remain limited. More comprehensive online resources are needed for HL patient education.
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