A protocol for Data Registry system for Reconstructive Urology procedures in Iran

Data registry systems are vital tools for systematically collecting, storing, and analyzing disease-specific data within defined patient populations. This protocol presents a national registry system designed to prospectively collect data on patients undergoing reconstructive urology surgeries in Iran. A web-based registry involving multiple centers across Iran with official collaboration agreements will collect demographic, clinical, surgical, and follow-up data. Patients meeting inclusion criteria are enrolled following informed consent. Data confidentiality and integrity are maintained using a secure software hosted at the Men's Health and Reproductive Health Research Center in Tehran. Standardized clinical questionnaires (IIEF, IPSS, USS_PROM, ICIQ-LUTSqol) and checklists capture patient outcomes prospectively up to 27 months post-surgery. The registry will provide epidemiological insights, monitor treatment outcomes, complications, and clinical improvements, extraction of guidelines, and policy brief, and support collaborative research nationally and internationally. This registration system was designed to achieve evidence-based data with the coherence of patient data for policy-making and therapeutic interventions.