International spinal cord injury vocational rehabilitation basic data set

International expert working group consensus.

To develop an International Spinal Cord Injury (SCI) Vocational Rehabilitation Basic Data Set presenting a standardised format for collection and reporting of a minimal amount of information on vocational rehabilitation in daily practice or research in SCI.

Representation from six countries and four world regions.

An iterative decision-making and consensus process was applied, integrating evidence and expert opinion related to SCI and vocational rehabilitation. A Rapid Review of key literature was conducted to identify key concepts, models or frameworks, relevant domains/categories, specific items, and outcomes or predictors in vocational rehabilitation. Following this, a Data Mapping Exercise matched data fields/items from multiple sources and existing International Spinal Cord Society (ISCoS) Data Sets. Further mapping was performed for alignment of fields against the conceptual framework using a consensus approach, identifying gaps and anchoring decisions on key elements and agreement on common terms/definitions. The ISCoS Data Set Advisory Committee provided feedback and assisted with key decision-making throughout the consultative and consensus process. Consumer perspectives were integrated into the data set development. Suggested revisions were considered, and a final version of the data set was disseminated again for final approval and adoption.

The Basic Data Set was developed, consisting of nine items.

The International SCI Vocational Rehabilitation Basic Data Set provides a standard and consistent way to capture the lived experience of work functioning of people with SCI and support the integration of vocational rehabilitation in clinical practice and comparative research.

N/A.