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UCLA hospice evaluation study. Methodology and instrumentation.

J Wales, R Kane, S Robbins

    Medical Care
    |July 1, 1983
    PubMed
    Summary
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    This study details the methods and validated scales used in a unique randomized controlled trial (RCT) for hospice care. Findings confirm the reliability of these instruments for measuring patient outcomes in advanced cancer care.

    Area of Science:

    • Palliative Care Research
    • Clinical Trial Methodology
    • Health Outcomes Measurement

    Background:

    • Evaluating hospice effectiveness necessitates rigorous study designs like randomized controlled trials (RCTs).
    • Implementing RCTs in hospice settings presents significant methodological challenges.
    • Previous research often lacks the robust design required for unbiased hospice effectiveness evaluation.

    Purpose of the Study:

    • To describe the methodology of the sole randomized controlled trial (RCT) conducted for hospice effectiveness.
    • To report on the validity and reliability of measurement scales used to assess hospice goal attainment.
    • To establish reliable instruments for evaluating patient and caregiver experiences in hospice.

    Main Methods:

    • Conducted a randomized controlled trial (RCT) with advanced cancer patients (6-month prognosis) at a VA hospital.

    Related Experiment Videos

  • Collected data through periodic interviews with patients and their significant others until patient death.
  • Utilized validated scales (e.g., McGill Pain, CES-D Depression, Satisfaction with Care) and assessed test-retest reliability.

    • Main Results:

    • The study successfully implemented an RCT design in a hospice setting.
    • Validated scales demonstrated strong test-retest reliability (coefficients 0.77–0.97) with advanced cancer patients and their significant others.
    • Key hospice variables including pain, depression, anxiety, and satisfaction were reliably measured.

    Conclusions:

    • The described methodology provides a framework for conducting RCTs in hospice care.
    • The selected measurement scales are valid and reliable for assessing hospice goals and patient outcomes in advanced cancer.
    • This research supports the use of validated instruments for unbiased hospice effectiveness evaluation.