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[The spina bifida patient and his family: psychologic and social aspects. 2]
Insights
This study examines the sociopsychological impact of spina bifida on families. It details parental concerns, psychological effects, and evolving needs following diagnosis and treatment.
Area of Science:
- Pediatric Psychology
- Family Studies
- Developmental Disabilities
Context:
- Focuses on families with children diagnosed with spina bifida.
- Utilizes data from 130 families through questionnaires and interviews.
- Examines the family's experience from diagnosis through ongoing support.
Purpose:
- To present the sociopsychological aspects experienced by families of children with spina bifida.
- To detail the immediate and successive challenges faced by parents.
- To understand parental expectations and demands regarding support services.
Summary:
- Investigates the initial sociopsychological impact upon learning of the spina bifida diagnosis.
- Analyzes the evolving psychological effects and parental concerns over time.
- Documents parental expectations and needs after psychological interventions for children and families.
Impact:
- Provides insights into the long-term psychosocial needs of families affected by spina bifida.
- Informs the development of targeted support programs for parents and children.
- Highlights the importance of continuous psychological care and family-centered interventions.
Abstract:
In the second part of the present work the data which was obtained through questionnaires and interviews with 130 families with children affected by spina bifida is presented. Presented first are the immediate sociopsychological aspects of the family when they are informed about the malformation, the derived psychological effects and the preoccupations relating to the life of their child. Then the aspects of the successive social and psychological problems of these parents are presented, and finally the expectations and demands of the same parents following the psychological operations carried out at the centre to the benefit of the children and their families.