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Related Experiment Videos

Spina bifida adults.

A P Lonton, A M O'Sullivan, A M Loughlin

    Zeitschrift Fur Kinderchirurgie : Organ Der Deutschen, Der Schweizerischen Und Der Osterreichischen Gesellschaft Fur Kinderchirurgie = Surgery in Infancy and Childhood
    |December 1, 1983
    PubMed
    Summary
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    Factors affecting employability among young adults with spina bifida and hydrocephalus.

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    Young adults with spina bifida face significant employment barriers and desire more independence. Despite college education, employability is linked to handicap severity, with males showing better job retention.

    Area of Science:

    • Rehabilitation Medicine
    • Disability Studies
    • Adult Health

    Background:

    • Spina bifida is a complex congenital condition impacting multiple life domains.
    • Understanding the transition to adulthood for individuals with spina bifida is crucial for targeted support.
    • Limited research exists on the employment, independence, and social integration of young adults with spina bifida.

    Purpose of the Study:

    • To assess the employment status and challenges faced by young adults with spina bifida.
    • To investigate factors influencing employability and job retention in this population.
    • To explore living arrangements, social relationships, and health concerns.

    Main Methods:

    • Survey data collected from 137 adults with spina bifida (aged 18-25).

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  • In-depth interviews conducted with 35 participants for more detailed information.
  • Analysis of questionnaire and interview data to identify trends and correlations.

    • Main Results:

    • 52% attended college, but many found courses irrelevant for employment.
    • Only 23% were currently employed, though 45% had past employment experience.
    • Employability correlated with handicap severity; males had higher job retention.
    • 14% lived independently, with many desiring to move out.
    • Low rates of marriage (3%) and relationships (24%) were reported.
    • Common health issues included urinary tract problems (38%) and pressure sores (26%).

    Conclusions:

    • Young adults with spina bifida experience significant vocational challenges and limited independence.
    • Degree of handicap and gender are key factors in employment outcomes.
    • There is a need for better vocational training relevance and support for independent living.