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Social perspectives in Huntington's chorea.

M R Hayden, R Ehrlich, H Parker

    South African Medical Journal = Suid-Afrikaanse Tydskrif Vir Geneeskunde
    |August 2, 1980
    PubMed
    Summary
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    Huntington's chorea has severe social impacts, including increased crime and suicide rates. This neurodegenerative disease places a substantial economic burden on families and society, with significant costs for care.

    Area of Science:

    • Neurology
    • Social Sciences
    • Public Health

    Background:

    • Huntington's chorea (HC) is a devastating neurodegenerative disorder with profound societal consequences.
    • The disease affects individuals, families, and communities, necessitating a comprehensive understanding of its broader implications.

    Purpose of the Study:

    • To outline the significant social and economic ramifications of Huntington's chorea.
    • To highlight the societal costs associated with managing this complex genetic disorder.

    Main Methods:

    • This study is a review of the social and economic literature pertaining to Huntington's chorea.
    • Analysis of existing data on crime, suicide, and direct state costs related to Huntington's chorea.

    Main Results:

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    • Huntington's chorea is associated with a notable prevalence of suicide and criminal activity.
    • The economic burden is substantial, with estimated direct costs to the state in South Africa reaching R23,000 per affected individual.

    Conclusions:

    • The social and economic impact of Huntington's chorea extends beyond the individual, affecting families and the wider community.
    • Addressing the multifaceted challenges of Huntington's chorea requires integrated social support and economic strategies.