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Stigma in patients with rectal cancer: a community study
Journal of Epidemiology and Community Health
|December 1, 1984
Summary
Half of rectal cancer patients experience stigma, particularly younger individuals and those with a colostomy. This perceived stigma impacts health, medical service use, and social participation, highlighting the need for tailored support.
Area of Science:
- Oncology
- Psychosocial Oncology
- Quality of Life Research
Background:
- Rectal cancer significantly impacts patients' quality of life.
- Stigma is a recognized psychosocial factor affecting cancer survivors.
- The experience of stigma, especially with a colostomy, requires further investigation.
Purpose of the Study:
- To assess perceived stigma in rectal cancer patients.
- To explore the relationship between stigma, quality of life, and health outcomes.
- To evaluate the impact of stigma on healthcare utilization and satisfaction.
Main Methods:
- Community survey involving 420 rectal cancer patients.
- Utilized a self-rating measure for stigma and supplementary questions.
- Included 265 patients with a permanent colostomy.
Main Results:
- 50% of patients reported feeling stigmatized, with higher rates in younger patients and those with a colostomy.
- Stigma correlated with poorer health, emotional disorders, comorbidities, and disablement.
- Stigmatized patients used medical services more but reported lower satisfaction, especially regarding communication.
Conclusions:
- Perceived stigma is a significant issue for rectal cancer patients, irrespective of socioeconomic status.
- Stigma is linked to adverse health and social outcomes, including withdrawal from social activities.
- Self-rating stigma assessment provides valuable insights beyond traditional quality of life measures.