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Natural history of adult Hirschsprung's disease

Insights

Adult Hirschsprung's disease presents with severe constipation since birth. Surgical intervention significantly improves symptoms in most adult patients diagnosed with this rare condition.

Area of Science:

  • Gastroenterology
  • Colorectal Surgery
  • Pediatric Surgery

Background:

  • Hirschsprung's disease is a congenital condition typically diagnosed in infancy.
  • Adult presentation of Hirschsprung's disease is rare and often misdiagnosed.
  • Understanding the natural history and diagnostic challenges in adults is crucial.

Purpose of the Study:

  • To review the natural history of adult Hirschsprung's disease.
  • To identify key diagnostic features and treatment outcomes in adult patients.
  • To emphasize the importance of considering Hirschsprung's disease in adults with chronic constipation.

Main Methods:

  • Retrospective review of 22 adult patients with Hirschsprung's disease (4 from own institution, 18 from literature).
  • Analysis of clinical presentation, diagnostic findings (barium enema, anorectal manometry, rectal biopsy), and treatment outcomes.
  • Evaluation of diagnostic criteria and surgical success rates.

Main Results:

  • Diagnosis occurred before age 30 in nearly half of patients, with the oldest diagnosed at 69.
  • A male predominance (4:1 ratio) and severe, lifelong constipation were common.
  • Radiological findings included rectal narrowing (77%) and colonic dilation (100%); rectal biopsy confirmed aganglionosis in all.
  • Surgical treatment improved symptoms in over 80% of patients.

Conclusions:

  • Adult Hirschsprung's disease is characterized by severe, lifelong constipation and a male predominance.
  • Diagnostic tools like barium enema and rectal biopsy are essential for diagnosis in adults.
  • Surgical correction is effective in managing symptoms of adult Hirschsprung's disease.

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