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Information available from surrogate respondents in case-control interview studies.

L W Pickle, L M Brown, W J Blot

    American Journal of Epidemiology
    |July 1, 1983
    PubMed
    Summary

    Surrogate respondents in fatal disease studies provide varied information accuracy. Siblings excel with early life data, while spouses and offspring are better for adult life events in epidemiologic research.

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    Area of Science:

    • Epidemiology
    • Medical Sociology

    Background:

    • Epidemiologic studies of fatal diseases frequently rely on relatives or friends (surrogate respondents) for patient data.
    • Assessing the accuracy of surrogate-reported information is crucial for study validity.

    Purpose of the Study:

    • To evaluate the ability of different types of surrogate respondents to provide accurate information on deceased or disabled individuals.
    • To identify factors influencing the accuracy of surrogate-reported data in case-control studies.

    Main Methods:

    • Analysis of data from three recent case-control studies involving 2606 interviews.
    • Comparison of information provided by various surrogate respondents (sibs, spouses, offspring) regarding smoking, occupation, medical history, and demographics.

    Main Results:

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    • Surrogate respondent accuracy varied significantly by topic, detail level, respondent type, race, sex, age, and study area.
    • Siblings were most accurate for early life events and immediate family information.
    • Spouses and offspring demonstrated higher accuracy for information pertaining to adult life events.

    Conclusions:

    • The type of surrogate respondent is the most significant factor affecting data accuracy.
    • Recommendations are provided to enhance the design of future interview studies utilizing surrogate respondents.