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Ethical issues in palliative care research

L de Raeve1

  • 1Centre for Philosophy and Health Care, University College of Swansea, UK.

Palliative Medicine
|October 1, 1994
PubMed
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Research involving dying individuals raises significant ethical concerns. This paper argues that no experimental research on terminally ill patients is morally justifiable, exploring rights-based and benefit-harm perspectives.

Area of Science:

  • Medical Ethics
  • Bioethics
  • Research Ethics

Background:

  • Ethical considerations in human subject research are well-documented, especially concerning vulnerable populations.
  • The specific ethical challenges of conducting research with terminally ill individuals require focused examination.

Purpose of the Study:

  • To critically evaluate the moral justification of experimental research involving dying patients.
  • To explore differing ethical viewpoints, including rights-based and consequentialist (benefit-harm) approaches.
  • To demonstrate that all research methodologies carry inherent risks.

Main Methods:

  • Ethical analysis of research principles.
  • Examination of rights-based ethical frameworks.
  • Weighing of potential benefits against harms in research contexts.
Keywords:
Biomedical and Behavioral ResearchDeath and Euthanasia

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Main Results:

  • A strong ethical case is presented against conducting experimental research with dying individuals.
  • Alternative ethical justifications for such research are explored and critiqued.
  • The inherent non-benign nature of all research methodologies is highlighted.

Conclusions:

  • Experimental research on dying patients is ethically indefensible.
  • Ethical frameworks must rigorously assess the risks and benefits for vulnerable populations.
  • No research methodology is entirely without ethical implications or potential harm.