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Related Experiment Videos

Functional measures in children with rheumatic diseases

K J Murray1, M H Passo

  • 1William S. Rowe Division of Rheumatology, Children's Hospital Medical Center, Cincinnati, Ohio, USA.

Pediatric Clinics of North America
|October 1, 1995
PubMed
Summary

Measuring function in pediatric rheumatic diseases is crucial for diagnosis and treatment monitoring. This review covers instruments assessing physical, psychosocial, economic, and quality of life outcomes in children.

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Area of Science:

  • Pediatric Rheumatology
  • Health Outcomes Measurement
  • Clinical Assessment Tools

Background:

  • Systematic measurement of function is essential for children with rheumatic diseases.
  • It informs initial diagnosis and ongoing clinical management.
  • Existing instruments for general pediatric and adult populations provide a basis for pediatric rheumatology tools.

Purpose of the Study:

  • To review the development of instruments for measuring function in pediatric rheumatic diseases.
  • To discuss specific and general tools for assessing disease and treatment outcomes.
  • To address key dimensions including physical, psychosocial, economic, and quality of life impacts.

Main Methods:

  • Literature review of functional measurement instruments.

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  • Discussion of instruments adapted from general pediatric and adult rheumatology.
  • Focus on instruments relevant to pediatric rheumatology practice.

    • Main Results:

    • Development of specific and general instruments for pediatric rheumatic diseases is ongoing.
    • These instruments systematically measure physical function, psychosocial impact, economic impact, and quality of life.
    • Adaptation of existing tools is a key strategy.

    Conclusions:

    • Standardized functional assessments are vital for pediatric rheumatic disease care.
    • A range of instruments are available to evaluate comprehensive outcomes.
    • Continued development and validation of these tools are necessary.