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Related Experiment Videos

Early onset diabetes: parents' views

H Parker1, P G Swift, J L Botha

  • 1Department of Epidemiology and Public Health, University of Leicester, UK.

Diabetic Medicine : a Journal of the British Diabetic Association
|July 1, 1994
PubMed
Summary

Parents of children with early-onset diabetes reported fewer practical management worries over time. However, concerns about hypoglycemia and long-term complications persisted, especially regarding diet for girls.

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Area of Science:

  • Pediatric Endocrinology
  • Child Psychology
  • Public Health

Background:

  • Type 1 diabetes diagnosed before age 2 presents unique lifelong management challenges.
  • Understanding parental coping strategies is crucial for supporting children with early-onset diabetes.

Purpose of the Study:

  • To investigate how parents coped with their child's early-onset diabetes (diagnosed before age 2).
  • To identify long-term parental concerns and challenges associated with childhood diabetes management.

Main Methods:

  • A postal questionnaire survey was conducted in 1990-91.
  • Parents of 309 children diagnosed with diabetes between 1972-1981 (before age 2) participated.
  • 85% parental response rate achieved, with children aged 9-19 years at survey.

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Main Results:

  • Parents reported reduced anxiety regarding practical diabetes management (injections, monitoring) as duration increased.
  • Concerns about hypoglycemia and long-term vascular complications remained significant.
  • Diabetes-related school difficulties affected 34% of children; 27% missed more school days.
  • Parents of girls reported significantly more worries, particularly about diet, compared to parents of boys.

Conclusions:

  • Paediatric diabetes teams must address long-term implications and support the transition of self-management responsibility.
  • Sensitivity is needed regarding parental role changes as children gain independence in managing their diabetes.
  • Ongoing psychological support is vital, particularly concerning diet and potential complications.