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The HIV-infected child: parental responses and psychosocial implications

L Wiener1, S Theut, S M Steinberg

  • 1Pediatric HIV Psychosocial Support Program, Pediatric Branch, National Cancer Institute, Bethesda, Md.

Insights

Parents of children with HIV often experience anxiety, depression, and grief. These psychological distress factors are linked to the child

Area of Science:

  • Psychology
  • Pediatric Health
  • Public Health

Background:

  • Parental adaptation to pediatric HIV presents unique psychological challenges.
  • Understanding these challenges is crucial for effective family support.

Purpose of the Study:

  • To examine the psychological adaptation of parents with HIV-infected children.
  • To identify risk factors for psychological distress in this population.

Main Methods:

  • Cross-sectional study involving 101 parents of HIV-infected children.
  • Assessment of four dimensions of psychological adaptation.

Main Results:

  • Heightened anxiety, depression, and anticipatory grief were prevalent.
  • Child's age at diagnosis, parent's HIV status, and relationship to child were associated with distress.
  • Specific parental risk factors for psychological distress were identified.

Conclusions:

  • Early diagnosis and parental HIV status significantly impact parental psychological well-being.
  • Intervention timing is critical for supporting parents of children with HIV.

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