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The establishment of an HNPCC register
T Myrhøj1, I Bernstein, M L Bisgaard
1Danish HNPCC Register, Department of Surgical Gastroenterology, Hvidovre.
Abstract:
Guidelines for the establishment of an HNPCC-register are presented. The aims of a register are discussed. Steps in identification of families and persons at risk are suggested, and possible sources of family and pedigree data are mentioned. The role of a register in surveillance, information of family members and medical colleagues, research and international collaboration are discussed.
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