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Genetic discrimination and screening for hemochromatosis
J S Alper1, L N Geller, C I Barash
1Center for Genetics and Public Policy, University of Massachusetts-Boston 02125.
Journal of Public Health Policy
|January 1, 1994
Summary
Genetic discrimination is a growing concern, particularly for hemochromatosis. Individuals with controlled hemochromatosis face unfair employment and insurance discrimination despite no increased health risks.
Area of Science:
- Genetics
- Medical Ethics
- Public Health
Background:
- Advances in hemochromatosis genetic testing.
- Proposed mass screening programs for hemochromatosis.
- Potential for increased genetic discrimination.
Observation:
- Documented cases of discrimination against individuals with hemochromatosis.
- Discrimination impacts employment and insurance.
- Affected individuals are often asymptomatic or have controlled conditions.
Findings:
- Genetic discrimination is occurring.
- Discrimination is unjustified as controlled hemochromatosis shows no excess mortality or morbidity.
- Current practices disproportionately affect individuals with hemochromatosis.
Implications:
- Need to address and mitigate genetic discrimination.
- Proposed screening programs must consider the societal impact.
- Ethical considerations are paramount in genetic testing and screening.