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Facial cleft deformities: maternal perceptions regarding causes and interventions

F van Staden, C Gerhardt

    Curationis
    |August 1, 1994
    PubMed
    Summary

    Maternal counseling significantly improved understanding of cleft causes. Support needs highlighted include accessible information and better hospital care for children with facial cleft deformities.

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    Area of Science:

    • Pediatric Medicine
    • Genetics
    • Psychology

    Background:

    • Facial cleft deformities are common congenital conditions.
    • Maternal understanding of causes and support during treatment significantly impacts coping.
    • Previous research has explored parental experiences with childhood disabilities.

    Purpose of the Study:

    • To survey maternal perceptions of facial cleft deformity causes.
    • To assess the quality of support received during medical interventions.
    • To identify areas for improving care and support for affected families.

    Main Methods:

    • An open-ended questionnaire surveyed 138 mothers of children with facial cleft deformities.
    • Responses were content analyzed and thematically grouped.
    • The study focused on children up to 10 years of age attending a specialized clinic.

    Main Results:

    • Maternal views on cleft causes shifted significantly after counseling, reducing ignorance about factors like infections, medication, and heredity.
    • Counseling facilitated understanding and acceptance of the child's deformity.
    • Mothers reported both frustration and praise regarding treatment in general hospitals and the cleft unit, emphasizing needs for accessible information, reassurance, support groups, and improved hospital care.

    Conclusions:

    • Maternal counseling is crucial for understanding cleft causes and coping.
    • Enhancing support requires accessible information, improved communication from healthcare providers, and better hospital care protocols.
    • Multidisciplinary care and parental involvement are key to optimizing outcomes for children with facial cleft deformities.

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