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Telling children about their impending death

E Purssell

    British Journal of Nursing (Mark Allen Publishing)
    |February 10, 1994
    PubMed
    Summary

    Seriously ill children often know they are dying, and withholding this information can increase their stress. Nurses should consider who has the right to this sensitive diagnostic information.

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    Area of Science:

    • Pediatric Palliative Care
    • Child Psychology
    • Medical Ethics

    Background:

    • Many healthcare professionals and parents believe shielding children from terminal diagnoses protects them.
    • However, children with serious illnesses often possess an awareness of their impending death.
    • Withholding this information may exacerbate a child's psychological distress.

    Purpose of the Study:

    • To explore the awareness of death in seriously ill children.
    • To examine the impact of withholding terminal diagnoses on children's stress levels.
    • To address the ethical question of information ownership regarding a child's diagnosis.

    Main Methods:

    • This study is a conceptual analysis and ethical discussion.
    • It reviews existing literature on pediatric end-of-life care and communication.
    • It addresses the ethical dilemma posed by Rimmer (1993).

    Main Results:

    • Seriously ill children frequently demonstrate an understanding of their condition and mortality.
    • Denying children knowledge of their diagnosis can heighten their anxiety and stress.
    • The ownership of diagnostic information is a critical ethical consideration for healthcare providers.

    Conclusions:

    • Healthcare providers should acknowledge children's awareness of death.
    • Open communication, respecting the child's right to know, is crucial.
    • Ethical frameworks must guide decisions about sharing terminal diagnoses with children.
    Keywords:
    Death and EuthanasiaProfessional Patient Relationship

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