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Social support among persons with multiple sclerosis

E E Gulick1

  • 1College of Nursing, Rutgers, State University of New Jersey, Newark 07102.

Research in Nursing & Health
|June 1, 1994
PubMed
Summary

Social support for multiple sclerosis (MS) patients varies by gender and illness duration. Women with MS perceive less social support, highlighting needs for tailored health services.

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Area of Science:

  • Neurology
  • Social Sciences
  • Health Services Research

Background:

  • Multiple sclerosis (MS) is a chronic, progressive neurological disease.
  • Social support is crucial for managing chronic illnesses like MS.
  • Understanding social support dynamics in MS is vital for patient care.

Purpose of the Study:

  • To examine perceived social support functions and structure in persons with MS.
  • To investigate associations with illness duration, gender, marital status, and functional status.
  • To inform health service provision for individuals with MS.

Main Methods:

  • Cross-sectional study of 200 persons with multiple sclerosis.
  • Assessed perceived social support (functions and structure) and activities of daily living (ADL).
  • Analyzed data in relation to illness duration, gender, and spousal presence.

Main Results:

  • Significant gender differences in perceived emotional, affirmation, and instrumental support.
  • Changes in social network properties (frequency of relationships) over the course of the chronic illness.
  • Low to moderate correlations between ADL functioning, social support, and network size, especially in women.

Conclusions:

  • Social support perceptions and network characteristics differ among individuals with MS based on gender and illness progression.
  • Women with MS may require specific support interventions due to lower perceived support.
  • Further research is needed on gender and informational support deficits in MS patients.

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