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Ethics, genetic prediction, and heart disease
1School of Medicine, Case Western Reserve University, Cleveland, Ohio 44106.
The American Journal of Cardiology
|September 30, 1993
Summary
Genetic testing for diseases like cancer may lead to insurance discrimination. This raises ethical questions about fairness in health insurance access and risk underwriting.
Area of Science:
- Bioethics
- Health Insurance Law
- Genomics
Background:
- Predictive genetic testing for diseases like heart disease, stroke, and cancer is advancing.
- Commercial health insurance relies on "actuarial fairness," where premiums are risk-based.
- Underwriting uses risk assessment to determine insurance eligibility and cost.
Purpose of the Study:
- To explore the ethical implications of genetic information on health insurance access.
- To address concerns about distributive justice in the context of genetic predispositions.
- To clarify the empirical and moral aspects of genetic testing and insurance underwriting.
Main Methods:
- Analysis of the "adverse selection" problem in health insurance.
- Examination of the role of underwriting in the face of predictive genetic information.
- Review of the ethical considerations surrounding genetic data and insurance.
Main Results:
- Predictive genetic information could lead to individuals at high risk being denied or charged more for health insurance.
- Insurers may use genetic data to avoid insuring high-risk individuals, exacerbating health disparities.
- The Human Genome Project has highlighted the need to re-evaluate insurance practices.
Conclusions:
- The use of genetic information in health insurance raises significant ethical and justice concerns.
- A balance must be struck between actuarial fairness and equitable access to healthcare.
- Further clarification is needed on the social purpose of health insurance and the appropriateness of genetic risk underwriting.