Related Experiment Videos
[Hypoplastic left heart syndrome. Present experiences and future possibilities]
P S Hagemo1, S J Sørland, P G Bjørnstad
1Barnehjerteseksjonen, Rikshospitalet, Oslo.
Summary
Norwegian children with hypoplastic left heart syndrome underwent staged palliation in the US. This complex treatment involved significant travel and resulted in a high mortality rate, prompting a discussion on future care strategies.
Area of Science:
- Pediatric Cardiac Surgery
- Congenital Heart Disease Management
Context:
- Experiences with Norwood's staged palliation for hypoplastic left heart syndrome (HLHS) in Norwegian pediatric patients.
- National Health Insurance Scheme covering all expenses for transport, examination, and treatment for these children.
- 21 children transported to the USA for surgical intervention since 1987.
Purpose:
- To report on the outcomes of Norwood's staged palliation for HLHS in a specific cohort.
- To evaluate the feasibility and results of international surgical treatment for HLHS.
- To inform future treatment strategies for HLHS patients.
Summary:
- Eight children completed all stages of the palliative treatment.
- Two children are awaiting the third stage of surgery.
- Eleven children (over 50%) died during or after treatment.
Impact:
- Highlights the challenges and high mortality associated with advanced surgical palliation for HLHS.
- Informs the ongoing debate regarding the optimal management of HLHS.
- Necessitates a critical review of current treatment protocols and future planning for this patient group.