Quality of life for children with disabilities

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09:38

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Published on: January 29, 2014

B Lindström1, B Eriksson

  • 1Nordic School of Public Health, Göteborg.

Sozial- Und Praventivmedizin
|January 1, 1993
PubMed

Insights

Children with Cystic Fibrosis and Myelomeningocele report good material conditions but face challenges in personal psychological well-being, highlighting areas for improved health policies.

Area of Science:

  • Pediatrics
  • Public Health
  • Quality of Life Research

Background:

  • Existing research on children with special needs often overlooks quality of life, focusing instead on disease-specific issues.
  • The World Health Organization's (WHO) 'Health for All' policy emphasizes equity, necessitating an evaluation of life quality for vulnerable populations.

Purpose of the Study:

  • To compare the quality of life of children with Cystic Fibrosis and Myelomeningocele in Nordic countries against a general child population.
  • To assess the extent to which equity in health outcomes has been achieved in the Nordic region for these specific child groups.

Main Methods:

  • A comparative study involving 951 children with Cystic Fibrosis and Myelomeningocele from five Nordic countries.
  • Comparison with a control group of 10,290 children from a random sample.

Main Results:

  • Children with disabilities perceive favorable material and socio-economic conditions.
  • Personal psychological conditions were reported as less favorable compared to the general population.

Conclusions:

  • While Nordic children with Cystic Fibrosis and Myelomeningocele experience adequate external resources, their internal psychological well-being requires attention.
  • Future health policies should prioritize enhancing the personal psychological conditions for children with disabilities to promote overall quality of life and equity.

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