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Normalized growth velocity in children with Down's syndrome during growth hormone therapy

G Annerén1, J Gustafsson, V R Sara

  • 1Department of Clinical Genetics, University Hospital, Uppsala, Sweden.

Insights

Growth hormone therapy significantly improves height in children with Down syndrome (DS). Treatment initiated in infancy leads to sustained height gains, with head circumference showing less response, suggesting microcephaly in DS.

Area of Science:

  • Pediatrics
  • Endocrinology
  • Genetics

Background:

  • Children with Down syndrome (DS) exhibit reduced growth velocity between 6 months and 3 years.
  • Growth hormone (GH) plays a crucial role in regulating growth during this critical period.
  • Growth retardation in DS becomes pronounced as GH starts to regulate growth.

Purpose of the Study:

  • To evaluate the long-term effects of GH therapy on growth in children with DS.
  • To assess the impact of GH therapy on height and head circumference in infants and young children with DS.

Main Methods:

  • Longitudinal study of 16 children with DS treated with Genotropin (GH).
  • Treatment initiated between 6-9 months of age at a dosage of 0.1 U/kg/day.
  • Measurements of height and head circumference standard deviation scores (SDS) recorded at 12, 24, and 30 months.

Main Results:

  • Mean height SDS improved from -1.8 to -1.1 after 12 months, -0.9 after 24 months, and -0.9 after 30 months.
  • Mean head circumference SDS remained relatively stable, showing minimal improvement from -1.2 to -1.1.
  • Children's height reached the 95th percentile for DS growth charts after 24 months of treatment.

Conclusions:

  • GH therapy effectively enhances height in children with Down syndrome.
  • The therapy leads to sustained height growth, aligning with healthy children's growth rates after the first year.
  • Limited head circumference response suggests microcephaly is a significant factor in DS head size, beyond general growth retardation.

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