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Related Experiment Videos

A patient knowledge questionnaire in inflammatory bowel disease

S C Jones1, B Gallacher, A J Lobo

  • 1Gastroenterology Unit, General Infirmary, Leeds, England.

Journal of Clinical Gastroenterology
|July 1, 1993
PubMed
Summary

A new questionnaire assesses knowledge in patients with inflammatory bowel disease (IBD). Most IBD patients desire more disease information, indicating a need for better patient education strategies.

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Area of Science:

  • Gastroenterology
  • Patient Education
  • Health Psychology

Background:

  • Inflammatory Bowel Disease (IBD) management requires informed patients.
  • Assessing patient knowledge is crucial for effective education.
  • Existing tools for IBD knowledge assessment may be limited.

Purpose of the Study:

  • To develop and validate a multiple-choice questionnaire for assessing IBD patient knowledge.
  • To identify factors influencing IBD patient knowledge levels.
  • To evaluate patient desire for more information regarding their condition.

Main Methods:

  • Initial pilot testing of 20 questionnaires with question refinement based on discriminatory ability.
  • Validation of internal consistency (Cronbach's alpha = 0.84) and test-retest stability (Spearman R = 0.86).

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  • Administration of the final questionnaire to 60 IBD patients attending a colitis clinic.

    • Main Results:

    • The validated questionnaire demonstrated good internal consistency and stability.
    • The mean knowledge score was 13 out of 36, with 80% of patients desiring more information.
    • Higher knowledge scores were associated with membership in the National Association of Crohn's Disease and Colitis (NACC), Crohn's disease (CD) diagnosis, higher education levels, and younger age.

    Conclusions:

    • The developed questionnaire is a reliable tool for evaluating IBD patient knowledge.
    • Significant gaps in patient understanding of IBD exist, alongside a strong desire for more information.
    • The findings suggest the questionnaire can effectively assess the impact of patient education programs for IBD.