Related Experiment Video

Updated: Jul 7, 2026

Generation of Human Nasal Epithelial Cell Spheroids for Individualized Cystic Fibrosis Transmembrane Conductance Regulator Study
08:00

Generation of Human Nasal Epithelial Cell Spheroids for Individualized Cystic Fibrosis Transmembrane Conductance Regulator Study

Published on: April 11, 2018

A model for group intervention with the chronically ill: cystic fibrosis and the family

D G Brown1, K Krieg, F Belluck

  • 1Social Work Department, Roosevelt Division, St. Luke's-Roosevelt Hospital Center, New York, NY 10019, USA.

Social Work in Health Care
|January 1, 1995
PubMed

Insights

Caring for chronically ill children requires addressing physical and psychological challenges. A psychosocial group intervention program helps maximize adaptive responses for pediatric patients and their families navigating long-term health conditions.

Area of Science:

  • Pediatric Psychology
  • Childhood Chronic Illness
  • Family Systems

Background:

  • Chronic illnesses in children impose continuous stress on patients and families.
  • Managing physical and psychological sequelae is crucial as children reach developmental milestones.
  • Long-term care for pediatric chronic conditions presents unique challenges into adolescence and young adulthood.

Purpose of the Study:

  • To describe a psychosocial group intervention program for children with Cystic Fibrosis.
  • To enhance adaptive and functional responses in pediatric patients with chronic illness.
  • To explore emerging issues for patients, families, and staff during treatment.

Main Methods:

  • Development of a psychosocial group intervention program at a pediatric Cystic Fibrosis Center.
  • Focus on maximizing adaptive and functional responses in chronically ill children.
  • Qualitative exploration of themes and issues encountered by patients, families, and healthcare staff.

Main Results:

  • The intervention program aims to support children and families through the progression of chronic illness.
  • Identification of key psychosocial issues relevant to pediatric patients transitioning into adolescence and young adulthood.
  • The program facilitates coping mechanisms for the ongoing physical and psychological impacts of chronic conditions.

Conclusions:

  • Psychosocial group interventions are vital for managing the complexities of childhood chronic illness.
  • Addressing the evolving needs of pediatric patients and their families is essential for optimal outcomes.
  • Understanding patient, family, and staff perspectives informs effective long-term care strategies.

More Related Videos

Design and Development of a Model to Study the Effect of Supplemental Oxygen on the Cystic Fibrosis Airway Microbiome07:38

Design and Development of a Model to Study the Effect of Supplemental Oxygen on the Cystic Fibrosis Airway Microbiome

Published on: August 3, 2021

Growing a Cystic Fibrosis-Relevant Polymicrobial Biofilm to Probe Community Phenotypes03:53

Growing a Cystic Fibrosis-Relevant Polymicrobial Biofilm to Probe Community Phenotypes

Published on: April 19, 2024

Related Concept Videos

Cystic Fibrosis: Pathogenesis01:23

Cystic Fibrosis: Pathogenesis

Cystic fibrosis (CF), an autosomal recessive disorder, significantly affects the function of exocrine glands. This genetically inherited disease is characterized by the production of thick and sticky mucus, which can severely affect various organs and systems in the body.
CF is primarily caused by a genetic mutation in a chromosome 7 gene coding for the cystic fibrosis transmembrane conductance regulator (CFTR) protein. The most common gene mutation leading to CF is the ΔF508 mutation, but...
Cystic Fibrosis: Management01:24

Cystic Fibrosis: Management

Cystic fibrosis (CF) is an autosomal recessive disorder that predominantly affects individuals of Northern European descent, occurring at a rate of 1 in 3500. It is caused by a genetic mutation in a gene on chromosome 7, most commonly the ΔF508 mutation, that codes for the cystic fibrosis transmembrane conductance regulator (CFTR) protein. This results in thicker mucus secretions and obstruction pathologies in multiple organs, including the lungs and sinuses.
Sinus disease and chronic sinusitis...
Chronic Obstructive Pulmonary Disease-V: Management01:29

Chronic Obstructive Pulmonary Disease-V: Management

Managing Chronic Obstructive Pulmonary Disease (COPD) involves a multifaceted approach to reduce symptoms, prevent exacerbations, improve overall health status, and slow disease progression. Key strategies include lifestyle modifications, pharmacotherapy, supportive therapies, and, in some cases, surgery. Here is an overview of the primary COPD management strategies:
Smoking Cessation
Chronic Obstructive Pulmonary Disease-V: Nursing Management01:30

Chronic Obstructive Pulmonary Disease-V: Nursing Management

Nursing management of Chronic Obstructive Pulmonary Disease (COPD) is crucial for providing thorough care and support to patients. Nurses play an integral role in this process through detailed assessment, careful planning, targeted interventions, and ongoing evaluation. Here's an overview of the critical steps in nursing management for COPD.
Assessment
Chronic Pancreatitis II: Collaborative Care01:29

Chronic Pancreatitis II: Collaborative Care

The management of chronic pancreatitis is multifaceted, involving a comprehensive approach that includes thorough assessment, diagnostic testing, and a variety of management strategies.
Assessment:
Chronic Obstructive Pulmonary Disease I: Introduction01:23

Chronic Obstructive Pulmonary Disease I: Introduction

Chronic obstructive pulmonary disease is a common, preventable, and treatable respiratory disorder characterized by persistent symptoms and progressive airflow limitation. This limitation results from a combination of small-airway disease (obstructive bronchiolitis) and parenchymal destruction (emphysema), both driven by chronic inflammation from exposure to harmful particles or gases.The disease includes two main pathological entities: emphysema, marked by destruction of alveolar walls and...