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Parent participation. 2: Findings and their implications for practice

S J Neill

    British Journal of Nursing (Mark Allen Publishing)
    |January 7, 1996
    PubMed
    Summary

    Parents want to participate in their child

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    Area of Science:

    • Pediatric Nursing
    • Parental Engagement in Healthcare
    • Child Hospitalization Experiences

    Background:

    • Understanding parental involvement in pediatric care is crucial for improving patient and family experiences.
    • Previous research indicates varying levels of parental participation and satisfaction during child hospitalization.

    Purpose of the Study:

    • To explore parents' perspectives on participating in their hospitalized child's care.
    • To identify facilitators and barriers to parental participation in pediatric hospital settings.
    • To inform guidelines for enhancing parent involvement in pediatric care.

    Main Methods:

    • Qualitative exploratory study utilizing tape-recorded, semi-structured interviews.
    • Participants: Parents of children aged 2-5 years, interviewed within two months of hospital discharge.
    • Grounded theory approach to data analysis.

    Main Results:

    • Parents desire participation at a self-determined level, preferring professionals manage clinical care and parents manage daily routines.
    • Challenges identified include communication issues and paternalistic relationships between parents and healthcare professionals.
    • Parents of children with single, short admissions reported greater difficulty in participating in care.

    Conclusions:

    • Parental participation in pediatric hospital care is valued but influenced by relationship dynamics and care structure.
    • Addressing communication barriers and fostering collaborative relationships can enhance parental involvement.
    • Developed guidelines aim to facilitate appropriate parent participation for children aged 2-5 years during hospitalization.

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