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Living with ulcerative colitis

S Dudley-Brown

    Gastroenterology Nursing : the Official Journal of the Society of Gastroenterology Nurses and Associates
    |March 1, 1996
    PubMed
    Summary
    This summary is machine-generated.

    Living with ulcerative colitis involves uncertainty, fear of incontinence, and a constant search for treatment. The disease profoundly impacts daily life, family, social interactions, and work, often leading to a feeling of being controlled by it.

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    Area of Science:

    • Gastroenterology
    • Qualitative Health Research
    • Patient Experience Studies

    Background:

    • Ulcerative colitis (UC) is a chronic inflammatory bowel disease.
    • Understanding the lived experience of UC patients is crucial for holistic care.
    • Current research often focuses on clinical outcomes, with less emphasis on patient-reported experiences.

    Purpose of the Study:

    • To explore and describe the lived experience of individuals with ulcerative colitis.
    • To gain insight into the multifaceted challenges faced by UC patients.
    • To identify key themes emerging from the subjective experiences of living with UC.

    Main Methods:

    • Phenomenological approach utilized for in-depth exploration.
    • Semi-structured interviews conducted with three diagnosed ulcerative colitis subjects.

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  • Thematic analysis of transcribed interview data to identify recurring patterns.

    • Main Results:

    • Five major themes emerged: uncertainty of exacerbations, fear/humiliation of incontinence, the quest for effective treatment, significant impact on family/social/work life, and feeling controlled by the disease.
    • Detailed insights into the profound personal and social impact of ulcerative colitis.
    • Qualitative data highlights the subjective burden of living with chronic illness.

    Conclusions:

    • Ulcerative colitis significantly affects multiple life domains, extending beyond physical symptoms.
    • Findings underscore the need for patient-centered care that addresses the psychosocial aspects of UC.
    • Implications for nursing practice include enhanced patient support and targeted research into patient-reported outcomes.