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Parent-held shared care records: bridging the communication gaps

L Hooker, J Williams

    British Journal of Nursing (Mark Allen Publishing)
    |June 10, 1996
    PubMed
    Summary

    Parent-held shared care records improve communication and teamwork for children needing paediatric haematology/oncology care. This innovation supports families and professionals in shared care settings, enhancing patient well-being closer to home.

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    Area of Science:

    • Paediatric Haematology/Oncology
    • Healthcare Management
    • Patient Care Coordination

    Background:

    • Specialist centres offer expert care but may require extensive travel for children.
    • Shared care systems aim to provide pediatric oncology services closer to patients' homes.
    • Challenges in communication and family involvement were identified in existing shared care models.

    Purpose of the Study:

    • To introduce parent-held shared care records in paediatric haematology/oncology.
    • To improve communication, teamwork, and family involvement in shared care.
    • To address parental and professional concerns regarding shared care management.

    Main Methods:

    • Development of parent-held shared care records through multidisciplinary team consultation.
    • Introduction of records to professionals from shared care hospitals during a study day.
    • Piloting the records with families before formal clinical integration.

    Main Results:

    • The parent-held shared care records have been accepted by both families and professionals.
    • The records are now an integral part of the shared care service.
    • Implementation facilitated better communication and collaboration.

    Conclusions:

    • Parent-held shared care records are a valuable tool in paediatric haematology/oncology.
    • This innovation enhances the delivery of care closer to the family home.
    • Further formal evaluation is ongoing to assess the full impact.

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