Issues to consider when choosing a computer program to assist Native American collection of accurate cancer data

Cancer registries are the primary source of cancer surveillance data and are an important component of a successful cancer control program. Some Native American tribes are currently served by cancer registries, but many are not. Native Americans will increasingly be involved in the development of new cancer registries and in improving the quality of data in existing registries.

The search for an appropriate software package should begin with a comprehensive review of the registry's goals and objectives. Other considerations include the availability of funding and human resources.

A good software package should be easy to use, able to provide readable documentation, flexible enough to accommodate change, and have a proven record of success. Software vendors should offer training and should be readily available to respond to questions and problems that may arise.

Numerous software programs are available to assist Native Americans with the collection and maintenance of cancer data, and most will meet the basic needs of a cancer registry. However, a successful cancer registration system depends on much more than software. Collaboration with an existing cancer registry may provide a reasonable alternative to developing and supporting a new registry. Professional organizations and other resources are available to provide guidance in this area.