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Functional status in children with limb deficiency: development and initial validation of an outcome measure
S D Pruitt1, J W Varni, Y Setoguchi
1University of California, San Diego School of Medicine, USA.
Insights
A new functional status inventory for children with limb deficiency was developed and validated. The Child Amputee Prosthetics Project-Functional Status Inventory (CAPP-FSI) shows strong reliability and validity for assessing health outcomes.
Area of Science:
- Pediatric orthopedics
- Rehabilitation medicine
- Prosthetics and orthotics
Background:
- Increasing demand for cost-effectiveness analyses in pediatric limb deficiency treatment.
- Need for empirically derived outcome instruments.
- Current limitations in assessing functional status in pediatric amputees.
Purpose of the Study:
- To develop and refine a new outcome measure for pediatric limb deficiency.
- To assess the initial psychometric properties of the Child Amputee Prosthetics Project-Functional Status Inventory (CAPP-FSI).
- To provide a reliable and valid tool for evaluating health outcomes in children with limb differences.
Main Methods:
- Survey of parents of children with limb deficiency during routine clinic visits.
- Development and refinement of the Child Amputee Prosthetics Project-Functional Status Inventory (CAPP-FSI).
- Evaluation of psychometric properties including internal consistency and construct validity.
Main Results:
- The CAPP-FSI demonstrated excellent internal consistency reliability (Cronbach's alpha = .96).
- Content validity was established.
- Initial construct validity was empirically confirmed.
Conclusions:
- The CAPP-FSI is a promising and reliable assessment instrument.
- It effectively measures important health outcomes in children with limb deficiency.
- The CAPP-FSI can be utilized in clinical and research settings for pediatric amputee care.
Objective:
To develop a new outcome measure in response to the increasing demands for cost effectiveness analyses and empirically derived outcome instruments in the treatment of pediatric limb deficiency. This article describes the development, refinement, and initial psychometric properties of the Child Amputee Prosthetics Project-Functional Status Inventory (CAPP-FSI).
Design:
Parents of children with limb deficiency were surveyed during routine clinic visits.
Setting:
Two outpatient pediatric clinics.
Participants:
Seventy-five parents and their children with limb deficiency (ages 8 to 17 years) participated in the study as part of annual physical evaluations or routine follow-up care.
Main Outcome Measure:
The newly developed CAPP-FSI.
Results:
Internal consistency reliability (Cronbach's alpha) = .96 for the CAPP-FSI. Content validity is described and initial construct validity is empirically confirmed.
Conclusion:
The CAPP-FSI is a promising assessment instrument for measuring important health outcomes in children with upper or lower limb deficiency.