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Parents' resources and home management of the care of chronically ill infants

Y M Sterling1, L C Jones, D H Johnson

  • 1Louisiana State University Medical Center, School of Nursing, New Orleans, USA. ysterl@nomvs.lsumc.edu

Journal of the Society of Pediatric Nurses : JSPN
|October 1, 1996
PubMed

Insights

Parents managing chronically ill infants at home need strong support systems. The Home Care Resources Inventory (HCRI) helps identify resource gaps in coping, time, and respite for better infant care.

Area of Science:

  • Pediatric Nursing
  • Family Caregiving
  • Health Psychology

Background:

  • Home care for chronically ill infants presents unique challenges for parents and primary caretakers.
  • Understanding the resources available to these caregivers is crucial for successful infant management.
  • The Home Care Resources Inventory (HCRI) was developed to assess these caregiver resources.

Purpose of the Study:

  • To identify the resources available to parents managing chronically ill infants at home.
  • To determine the psychometric properties of the Home Care Resources Inventory (HCRI).

Main Methods:

  • A cross-sectional, descriptive study design was employed.
  • Participants included 100 parents/primary caretakers of chronically ill infants (ages 1-22 months) from outpatient clinics.
  • Data were collected using the HCRI, Spielberger State Anxiety Inventory, and a demographic questionnaire.

Main Results:

  • Parents reported strong support resources but inconsistent resources in coping, time, and respite.
  • The Home Care Resources Inventory (HCRI) demonstrated acceptable psychometric properties.
  • Mothers constituted 93% of the study sample.

Conclusions:

  • Identifying caregiver resources, particularly personal time and respite, is vital for effective home management of chronically ill infants.
  • The HCRI is a valid tool for pinpointing strengths and weaknesses in caregiver resources.
  • Addressing identified resource deficits can improve the well-being of both infants and their caregivers.
Abstract

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