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Published on: February 13, 2020
Are alternative long-term-care programs needed for adults with chronic progressive disability?
K M Donohoe1, N M Wineman, R A O'Brien
1University of Rochester, School of Nursing, New York, USA.
Summary
Planning long-term care for middle-aged adults with progressive neurological impairment is crucial. Innovative community services and residences are desired but viewed with some ambivalence.
Area of Science:
- Neurology
- Gerontology
- Rehabilitation Medicine
Background:
- Long-term care planning for middle-aged adults with progressive neurological impairment remains under-researched.
- Understanding factors influencing institutional placement risk is essential for this demographic.
Purpose of the Study:
- To examine risk factors for institutional placement in individuals with progressive neurological disabilities.
- To identify potential utilization of innovative long-term care preferences.
Main Methods:
- A study involving 102 clients (92 with multiple sclerosis, 10 with other progressive illnesses) aged 48 years on average.
- Analysis of social support, community service utilization (home-health aide, nursing services), and insurance status (Medicaid).
Main Results:
- Medicaid, functional disability severity, and limited social support correlated with increased community service use.
- Participants expressed interest in community residences (65%), adult day healthcare (63%), and family respite (46%), though with reservations.
- Small social support networks were noted, with family providing most tangible aid.
Conclusions:
- Nurses play a vital role in assessing current and future care needs for individuals with progressive neurological impairment.
- Early assessment and intervention by nurses can help modify living arrangements and prevent premature institutionalization.
- Exploring and offering innovative long-term care alternatives is important for this population.
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