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Perceived control and well-being in Parkinson's disease
1Department of Physiological Nursing, University of California, San Francisco, USA.
Western Journal of Nursing Research
|February 1, 1997
Summary
Patients with chronic illness benefit from perceived control over symptoms, improving well-being for both patients and caregivers. Control over disease progression did not show similar benefits.
Area of Science:
- Psychology
- Health Sciences
- Patient Care
Background:
- Chronic illnesses present challenges to patients' sense of control.
- Understanding factors influencing patient and caregiver well-being is crucial in managing chronic conditions.
Purpose of the Study:
- To investigate the impact of perceived control over symptoms (PCS) and disease progression (PCDP) on patient and caregiver outcomes.
- To identify specific aspects of control that influence well-being and burden in chronic illness.
Main Methods:
- Analysis of patient and caregiver outcomes in relation to PCS and PCDP.
- Statistical assessment of the association between perceived control and well-being/burden.
Main Results:
- Perceived control over symptoms (PCS) significantly correlated with improved patient well-being.
- PCS was also linked to enhanced caregiver well-being and reduced caregiver burden.
- No significant association was found between perceived control over disease progression (PCDP) and patient/caregiver outcomes.
Conclusions:
- Symptom management is a key area for intervention to enhance patient and caregiver well-being.
- The patient-caregiver dyad should be considered a unit in chronic illness care.
- Further research is needed on the role of control during different stages of chronic illness.