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Transcending chronic liver disease: a qualitative study

S P Wainwright1

  • 1Department of Nursing Studies, King's College London, UK.

Journal of Clinical Nursing
|January 1, 1997
PubMed
Summary

This qualitative study explores chronic liver disease patient experiences. It presents a two-stage framework for transcending illness, offering insights into patient psychological adjustment.

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Area of Science:

  • Medical Sociology
  • Psychological Adjustment
  • Chronic Illness Experience

Background:

  • Limited qualitative research exists on chronic liver disease patient experiences.
  • Understanding patient perspectives is crucial for holistic care.
  • Sociological and psychological models of illness inform the study.

Purpose of the Study:

  • To explore and describe the lived experiences of patients with chronic liver disease.
  • To develop a theoretical framework for understanding the process of transcending chronic liver disease.
  • To identify areas for future research in patient care and psychological support.

Main Methods:

  • Qualitative research design utilizing in-depth focused interviews.
  • Grounded theory approach for data collection and analysis.
  • Exploration of patient perspectives on chronic liver disease.

Main Results:

  • A two-stage theoretical framework: 'becoming ill' and 'not living'.
  • Detailed description of patient experiences in transcending chronic liver disease.
  • Identification of psychological adjustment challenges in end-stage patients.

Conclusions:

  • The study provides a novel framework for understanding chronic liver disease from the patient's viewpoint.
  • Highlights the need for further quantitative and qualitative research on psychological adjustment.
  • Emphasizes the importance of patient-centered approaches in managing chronic liver disease.

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