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Heart-lung transplantation for patients under 10 with cystic fibrosis

I M Balfour-Lynn1, I Martin, B F Whitehead

  • 1Transplant Unit, Great Ormond Street Hospital for Children NHS Trust, London.

Insights

Younger cystic fibrosis patients (under 10) show similar heart-lung transplant outcomes and survival rates compared to older children. Pediatricians should confidently refer these younger patients for transplantation assessment.

Area of Science:

  • Pediatric Cardiology
  • Transplantation Medicine
  • Cystic Fibrosis Research

Background:

  • Cystic fibrosis (CF) significantly impacts multiple organ systems, including the heart and lungs.
  • Heart-lung transplantation is a critical treatment option for end-stage CF-related cardiopulmonary disease.
  • The efficacy and safety of heart-lung transplantation in very young children with CF remain an area of active investigation.

Purpose of the Study:

  • To compare the outcomes of heart-lung transplantation assessment in pediatric patients with cystic fibrosis aged under 10 years versus older children.
  • To evaluate the impact of age on waiting list placement, transplant receipt, and post-transplantation survival in this cohort.
  • To provide evidence-based guidance for pediatricians regarding referrals for heart-lung transplantation in young CF patients.

Main Methods:

  • Retrospective analysis of pediatric patients with cystic fibrosis referred for heart-lung transplantation assessment.
  • Comparison of patient groups based on age: under 10 years versus older children.
  • Evaluation of key outcome metrics including waiting list placement rates, transplant rates, and survival at three years post-transplantation.

Main Results:

  • Similar proportions of younger (64%) and older (71%) CF patients were placed on the active waiting list.
  • Transplant receipt rates were comparable between the younger (35%) and older (31%) groups.
  • Three-year post-transplantation survival (41% vs. 46%) and overall survival for those on the active list (27% vs. 29%) were similar across age groups.

Conclusions:

  • Age under 10 years is not a contraindication for heart-lung transplantation assessment in pediatric cystic fibrosis patients.
  • Similar outcomes support the consideration of heart-lung transplantation for younger children with advanced CF.
  • Pediatricians should be encouraged to refer eligible younger CF patients for transplantation evaluation without hesitation.

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