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Patient-reported problems associated with dysphonia

S Scott1, K Robinson, J A Wilson

  • 1Department of Otolaryngology and Head and Neck Surgery, Glasgow Royal Infirmary, UK.

Clinical Otolaryngology and Allied Sciences
|February 1, 1997
PubMed
Summary
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Dysphonia significantly impacts social, lifestyle, and employment for patients. Understanding these patient-reported difficulties is crucial for developing effective voice disorder treatments.

Area of Science:

  • Speech and Hearing Sciences
  • Patient-Reported Outcomes
  • Voice Disorders

Background:

  • Limited assessment of dysphonia therapy efficacy in the UK.
  • Current objective and subjective measures inadequately capture patient experience.
  • Need for a patient-centered approach to understanding voice disorder impact.

Purpose of the Study:

  • To explore the lived experiences and difficulties faced by patients with dysphonia.
  • To develop a patient-derived understanding of voice disorder consequences.
  • To inform the development of more comprehensive treatment strategies.

Main Methods:

  • 133 patients with dysphonia completed an open-ended questionnaire.
  • Patients listed problems experienced due to their voice disorder.

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  • Responses were categorized using the WHO International Classification of Impairments, Disabilities and Handicaps (ICIDH).
  • Main Results:

    • 467 problems were identified: 60% impairments, 26% disabilities, 14% handicaps.
    • Major impairments included altered voice and throat symptoms.
    • Key disabilities involved lack of projection, clarity, and singing difficulties.
    • Handicaps encompassed psychological, emotional, employment, and social effects.

    Conclusions:

    • Dysphonia leads to significant social, lifestyle, and employment challenges.
    • Patient-reported outcomes provide valuable insights for treatment planning.
    • Addressing the holistic impact of dysphonia is essential for effective patient care.