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Juvenile arthritis: a nursing perspective

B Hartley1, C C Fuller

  • 1Rheumatology Clinics, Hospital for Sick Children, Toronto, Ontario, Canada.

Journal of Pediatric Nursing
|April 1, 1997
PubMed
Summary
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Coping with juvenile arthritis requires family adjustment. Healthcare teams can empower families through education, psychological support, and strategies to enhance quality of life for children with this chronic illness.

Area of Science:

  • Pediatrics
  • Rheumatology
  • Chronic Illness Management

Background:

  • Juvenile arthritis is a significant chronic illness affecting children, impacting family dynamics.
  • Diagnosis necessitates substantial lifestyle adjustments for the entire family.
  • Understanding the multifaceted challenges is crucial for effective care.

Purpose of the Study:

  • To provide an overview of juvenile arthritis.
  • To present case studies of polyarticular arthritis in siblings.
  • To discuss strategies for empowering families to manage the disease and improve quality of life.

Main Methods:

  • Literature review on juvenile arthritis.
  • Case study analysis of two sisters with polyarticular arthritis.
  • Exploration of multidisciplinary healthcare team roles.

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Main Results:

  • Families require comprehensive support to manage juvenile arthritis.
  • Education, psychological support, and physical functioning assistance are key.
  • Strategies to maintain self-esteem, motivation, and hope are vital.

Conclusions:

  • Healthcare professionals play a critical role in empowering families.
  • Multifaceted support enhances a child's quality of life despite juvenile arthritis.
  • Proactive family support is essential for successful long-term management.